MPN10: Track the severity of your PV-related symptoms

Using the sliders below, select a number from 0 (absent) to 10 (worst imaginable) that best describes the severity of, or how much difficulty you have had with, each symptom during the past week.

?

Fatigue

Early satiety

(filling up quickly when you eat)

Abdominal discomfort

Inactivity

Problems with concentration

(compared with before PV diagnosis)

Night sweats

Pruritus

(itching)

Bone pain

(widespread, not joint pain or arthritis)

Fever

(>37.8°C or >100°F)

Unintentional weight loss

(in the last 6 months)

To help you and your healthcare provider get a clear overall picture of how you feel with PV, each of your scores for the above symptoms will be added up to calculate your total symptom score.

Your score
00 /100

Use the additional space below to describe your general well-being over the past week or any other information you may want to discuss with your healthcare provider, such as what may be helping to alleviate or worsen symptoms, how you cope with symptoms, or how you feel after a phlebotomy.

Save
symptoms
Your symptoms
have been saved

What would you like to do next?

Maintain open conversation with your healthcare provider about your symptoms and any changes you may experience in how you feel

When living with a chronic condition like PV, it is important that you take an active role in monitoring your symptoms and discussing changes with your healthcare provider. Tell your healthcare provider if any of your symptoms become worse or more challenging for you, since this may indicate the need for care management approaches.

The following questions may help you discuss your symptoms with your healthcare provider:

  • Why is it important to track or monitor my symptoms?
  • Are some symptoms more important to track closely than others?
  • How can I tell if the symptoms are due to my PV or not?
  • What might it mean if my symptoms come and then appear to resolve?
  • How can I better manage or track improving or worsening symptoms?
  • What might worsening, or progressing, symptoms tell me about the status of my PV and my management options?

Reference: Mesa R, Miller CB, Thyne M, et al. Myeloproliferative neoplasms (MPNs) have a significant impact on patients’ overall health and productivity: the MPN Landmark survey. BMC Cancer. 2016;16(167):1-10.

This web application is intended for use as a resource and diary tracker for patients with polycythaemia vera. Information provided on this web application, including outputs from its interactive features, should not be considered an alternative to medical or management advice from your healthcare provider team.

This tool helps you track aspects of
your polycythaemia vera (PV), so you
are prepared for discussions with your
healthcare provider and have a record
of your disease status over time.

Score your symptom severity as often
as you would like. Enter your blood test
or phlebotomy results as needed, after
each procedure.